I did not sleep very well last night. I slept hard when I did sleep so now I feel like I'm in a fog. William came back from Jared's room around 2:00. He said that Jared's art line (used to monitor blood pressure) was not working so they took it out. He said the dialysis machine alarm went off several times too. I asked him if he wanted me to go stay with Jared but he said that was okay. He then told me I could if I wanted. I decided to sleep so I would be able to function today.
Around 6:30, someone called and asked for Rhonda. They said they would call back. The nurse, John, called at 6:45 and said that Jared's dialysis machine wasn't working so he would be off dialysis until they could get a new one. The next call was from Adam. His stomach and back were hurting when he breathed deeply so I told him to stay home from school and rest. My stepmom, Joyce, is staying with him at our house so he can go to school this week. I talked with Joyce and she was going to give Adam some medicine for his tummy.
I went back to sleep and then got up around 8:20. I hurriedly got ready and came to PICU. Jared was sleeping. He looks worn out. I guess from the morphine. It's been over two hours since the dialysis machine stopped working. We are waiting for a new machine. Jared's art line is still out so he has a blood pressure cuff on. His abdomen looks bigger. Grace suctioned his breathing tube at 9:00 and took blood.
*Lord, I pray for you to have your way today. Things are looking rough here. Have your way. Help me to trust all the way through. In Jesus name. Amen.
I'm feeling a little frustrated right now.
*Lord, Please touch Jared. Strengthen him. Have your way. I know that you are able to heal Jared. I just don't know your will for him. I think it is to heal Jared. I feel in my heart it is. Have your way in him. I will continue to believe in my heart that Jared will be healed. I give him to you and thank you for what you're going to do. In Jesus name. Amen.
Jared's oxygen level is lower today.
*Have your way, Lord. In Jesus name. Amen.
It is now 10:00 at night. Today has been an emotional day. The doctors made rounds this morning. Dr. Shipp cme in first and said that all the stem cell doctors believed that Jared had a chance for his liver to recover. He also told us that the doctors in PICU were more impatient and wanted quicker results. Dr. Winkler came in soon after and said that she thought Jared's liver would not recover. That was sobering but not shocking to hear. William and I were both a little upset. Jared's numbers were about the same. Dr. Winkler said that she would take the fluid from his chest this morning as well as put in the new art line.
Soon after they left I had to leave Jared's room because another patient was having problems. We later found out that a four month old baby with pneumonia had died. Rhonda had met the mom in the waiting area. I told Rhonda when she came back to the room. She had just been talking with the mom downstairs.
William and Rhonda soon left and I took a shower. I was really upset and God reminded me of the Shunammite woman (2 Kings 4). I came back to Jared's room and read the scripture to him and William. Soon after Brother Lynn arrived.
Rhonda and I went to lunch while Pastor Lynn stayed with William. We came back and William and Pastor Lynn went to lunch. We stayed with Jared and then went upstairs and took a break until a little after 4:00. When we were coming through, Mark, Debbie and Patrick were in the waiting area. Pastor Lynn left soon after.
We all took turns sitting with Jared. Later, William and I were the only ones in the room. Jared was pretty restless and was trying to tell us something. With the breathing tube, it was difficult for us to figure out what he was saying.
We left at 6:40 and all decided to go eat pizza. We had a nice meal and then came back to the hospital. Mark, Debbie and Patrick took turns coming back to see Jared and then they left. Rhonda came back and then Eldon Johnson came to visit. He is Aunt Elsie's pastor. We talked for a little while and then he left.
I sat with Jared. Around 10:00, his dialysis machine malfunctioned again. It is now 10:20 and we are waiting for the repair person. Mary Lucia told us that Jared's chest fluid was okay. It didn't have any bacteria, etc. in it. His bilirubin is now at 35. We are holding on for the miracle God is performing in Jared. Thank you, Lord.
__________________________________________________________
From: Lisa, William, Adam and Jared
Sent: Tuesday, April 2, 2002 12:21 p.m.
Subject: Jared Update
Hello everyone! I hope that all of you are well and enjoying the arrival of spring time weather. We are continuing the battle here in Birmingham. The doctors are doing all they know to do. They are encouraged that he isn't getting worse but still he's not improving either. Our stem cell doctors are still hopeful but the PICU doctor is not.
WE WILL REMAIN HOPEFUL!
Please continue to pray for Jared. Thanks for all the support!
From: Louise Jones
Subject: Re: Jared Update
We will remain hopeful with all of you. I still believe in miracles. Please give Jared our love.
From: Melinda
Subject: Re: Jared Update
Hello. Thanks for the note. You are all continually in our prayers and on the prayer list of friends. We love you all and hope that Jared will continually get better and have a complete turn around. Much love.
From: Diane
Subject: Re: Jared Update
 |
| Minnesota Snow - January 2002 |
Dear Lisa and Family:
We will maintain hope with you, for God is the ultimate healer. Praise Him for Jared not getting worse and holding his own. "Praise the LORD, O my soul, and forget not all His benefits -- who forgives all your sins and heals your diseases." Psalm 103:2,3 Love to you all. May His strength maintain you and continue to lift your arms as Moses' arms were lifted in His time of need. Love, Diane
From: Myra, Mike and Jeremy
Subject: Re: Jared Update
Hello guys! We are all so very grateful for your notes about Jared's progress. He is in our thoughts and prayers, as you all are. It is indeed good news that Jared's condition is steady. His youth will give him strength through all this. We, too, are hopeful for his full recovery. Until then, please know, you are all in our hearts each day. Please keep in touch whenever you can. We do so look forward to your emails. Love to all.
From: Deborah
Subject: Re: Jared Update
Dear Lisa. Just wanted yall to know that you are being thought of every hour of every day. You're all in our prayers!!! I haven't been emailing you because I know that your time on the computer is not where you need to be. Just wanted you to know that I've gotten all the emails from you and all. Thanks. I just pray and hope for an updated email to know how yall are. I Love Ya!!!
From: Wendy
Subject: Re: Jared Update
Hey Lisa! Thanks for the note and thanks for being so gracious to us last night. We enjoyed our time together. I have loved "The Sangsters" all my life, and that love certainly extends to you and your boys. Your faith is REAL and God's grace is sufficient for all things. I'm still praying and believing for many miracles to come out of Jared's cancer. And God's presence with you was so evident last night! I know I will never forget the events that transpired. Truly God provides for His children. Whatever we need, whenever the need arises, God provides. It would be unlike His nature to do anything else. Keep us posted when you have the chance. And know that there are many, many others praying for a miracle. I praise the Lord for the statement that I heard from your lips - either way, Jared wins. That certainly is a blessed hope and assurance. What a testimony your little man is living, and before the lives of so many! We are praying, trusting and believing with you! Much love, Wendy
From: Sue and Gene
Sent: Tuesday, April 2, 2002 1:58 p.m.
Subject: Re: Jared Update
William and Lisa,
I'm so glad that Wendy and Eric were able to drive over yesterday; wish we all could. I just read your latest update on Jared and appreciate so much your taking the time to keep us all informed. All four of you have been in our thoughts and prayers for all these months, and that will continue to be the case.
We have talked quite extensively with Dess the past two nights so she has passed on the events surrounding Jared also. Please know we love each of you and still have hope right along with you.
Take care and God Bless.
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