Last night I went back to the stem cell room and got ready for bed (or should I saw fold out chair.) William came to the room soon after. We all settled for the night. Adam called at 6:35 this morning. He wanted to stay home from school but I told him to go and come home if he didn't feel better. He then called because he couldn't find his jacket. I encouraged him the best I could.
We rested a little longer and then William got up. I was up soon after. I went down to Jared's room at 9:00. William and I are now sitting here in Jared's room. I'm writing in my journal and William is reading the Bible.
*Lord, I pray for your will. I pray for Jared. Touch him today. Have your way in his life. I thank you for the life you are pouring into Jared and what you will continue to pour into him. Lord, TOUCH him! DRAW him! PROTECT him! I pray that his bilirubin level willl start going down. I pray that his liver will return to its normal size. I pray that every place that is occluded will be healed and will perform its proper job. I pray for Jared's kidneys that they'll begin to work properly without the dialysis. I pray, Lord, that Jared will begin to urinate on his own. I pray Lord that Jared's swelling will start to fade and that all fluid that is not necessary for health and well being will be gone. I pray for your will in Jared. Touch him in Jesus name. Lord, touch Adam today! Strengthen him and give him grace to walk. Help him to trust you with his whole heart. Have your way in our family. In Jesus name. Amen.
It is now 9:00 at night. Dr. Shipp came in this morning and said he was encouraged that Jared had not gotten any worse. He feels that Jared has plateaued for the moment. They are going to continue everything and start trying to take off more fluid. Rhonda was in here when he came by. William came in before he left.
Grace was our nurse again. She had a busy day with Jared's dialysis machine alarm going off, etc. I left soon after and had lunch with Rhonda. She was trying to decide whether to leave or stay until tomorrow. She finally decided to go home.
I left for PICU and ran into Norman, William's brother, before I got on the elevator. We went to PICU and I left him with William. I went back a little later and asked if they wanted to go eat so they left soon after. Karen and Dr. Reddy came by. They sat for a few minutes talking. They both seemed encouraged with Jared's progress.
Around 2:00, I left to take Rhonda to the airport. I got back and had a hard time parking in the garage and finally ended up on the top floor. William and Norman left to go buy hubcaps for the van. I went upstairs to the stem cell room and then went back to Jared's room at 4:00.
Jared's bilirubin level is staying in the mid 30's. He was very alert earlier today. So much so that Dr. Winkler requested his right arm be restrained so he would not remove his new art line. He was awake a lot this morning.
William and Norman came back. They visited with Jared while I sat in the waiting area. Norman left soon after and I went back with Jared.
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Harry Koncar brought dinner again. It was great. He said that they would continue to pray. William and I ate in our room. On the way to eat, I was thinking about how serious things are with Jared. He has a machine to help him breath, a machine to help his kidneys and problems with his liver. Earlier today, I spent time reading my Guideposts magazine. It had two articles relating to a child having cancer and a lady having liver disease. They both sort of hit home with me. I realized while thinking about this that God is in control and nothing is too hard for him.
*For some reason, you are allowing this, Lord. Help me to be an instrument. In Jesus name. Amen.
William and I came back to Jared's room at 8:00. We sat with him for a few minutes and then William left to get Jared's other comforter. I stayed and watched the Amazing Race. William came back and brought the comforter and then went back to call Adam and put the other comforter in the washing machine. I'm sitting here with Jared.
*Lord, I thank you for this day. I thank you for friends and family. I pray for your will. In Jesus name.
Rhonda called when she got home. She made it home safely.
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