Today we woke up at 7:40. My mom called to see what was going on. I filled her in on the latest. We got our showers and got ready. On the way to the hospital, we went by Starbucks for coffee.
On the way to the stem cell room, we ran into Dr. May and associates. I hurriedly put my things away and then went to PICU. When I arrived, William was standing outside listening to the doctors. I decided to come on in the room and wait for them. They finally came in and said they were going to start giving Jared heparin shots. Heparin is used to treat and prevent blood clots in the veins, arteries or lungs and is also used as a blood thinner. They feel that waiting for Jared's liver to clear is more of a risk than bleeding.
Dr. May left and William did soon after. I sat with Jared. The nurse was busy today. Jared needed a lot of attention with meds, etc. His bilirubin level was 29.8. His ammonia was also high.
I stayed with Jared until 12:00. William came in and I went to lunch with Rhonda and Adam. Rhonda said that Pastor Lynn called and was going to come today. I went back to Jared's room and sat with William. Rhonda has decided to stay until Monday. I am glad.
I kidnapped William and went back to the Hope Lodge for a break. We went back to the hospital around 4:00. While we were gone, William and I talked about Jared and how things were going. We also decided that if anything happened to either of our children that we would bury them where we lived at the time. I'm glad that we had both already thought about it and made the same decision. We've moved many times over the years so we felt that would be best for our family.
We went back to see Jared. Rhonda and Adam were in there. The curtain was pulled so I hurried to see what was going on. They were putting bandages on Jared's skin. He is having skin problems.
William was exhausted so he left and I sat with Jared until 6:30. Adam and Rhonda came up just before visiting time was over. I asked them if they wanted to go to Chili's. William was asleep. I talked with Barbie and Merle. William woke up before we left. He decided to stay at the hospital. We ate and then came back. William was still on the 6th floor working on laundry.
We saw Pastor Lynn's van on the way inside so went to PICU. He and Brother Orville had already went in to see Jared. We all visited taking turns going to Jared's room. At 10:30, we went to the stem cell room. Rhonda and I left for the Hope Lodge. We played Yahtzee and working on laundry. It is now a little after 1:00. We are both exhausted.
*Give us all good sleep, Lord. In Jesus name.
Jared's bilirubin level is now 27. I miss him.
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Letter to Dad...
(William was working out of town)
Dear Dad,
I really miss you and I hope you come home soon. The last four nights we have been taping Zorro. Then we watch them the next day. I bet Rudy miss you too. I love you.
Love,
Jared
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| William & Jared (Birth Day) |
Jared's Journal (4th Grade)
Jared's teacher would write a topic on the board each day and the students would write it down in their journal and then answer...
If you were a fish and could talk to humans what would you say?
Why do you always eat my friends.
List the three most important people you know. Then explain why.
The president and my mom and dad.
Do you think you have a lot of self confidence? Explain.
Yes because my parents always tell me to have confidence in myself.
What is the hardest decision you ever had to make?
My hardest choice was when I could either go fishing or shopping. I chose to go shopping.
What 's the worst part about being sick? Explain.
When your sick you have to come back to school and do a bunch of work.
Explain what you think is the meaning of the saying "Beauty is only skin deep."
You should be nice on the inside too.
What happened the first time you went swimming?
My dad had to save me from drowning.
What are the advantages and disadvantages of being an only child.
If you are an only child you don't have anybody to blame stuff on but if you are an only child you won't get in fights.
If you were on a deserted island what three things would you take and why?
Food, drink and air conditioner
What do you think would happen if all the clocks and watches suddenly turned backwards.
Time would go backwards.
What makes you special or unique?
I was born on Mother's Day.
Who is your best friend?
My best friend is Cory Renella because we know each other very well.
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| Sangster Band - Recorder Time |
My Dad. He wheres glasses and he tall. He has blond hair and he's very nice.
Explain what you like and dislike about your name.
What I like about my name is that it sounds neat and it sounds cool.
What I dislike about my name is that people always spell my name wrong!
Write 5 sentences about your worst fear.
One time in Ocala I saw a huge spider by my bed. I was very scared. Then it started to crawl around. It wasn't a pretty sight when my dad got it with the vacuum cleaner.
I absolutely love this kid! I love reading what he writes and thinks and I love that he is so close to his Mom and Dad, and I really get that Jared was glad to have his brother to help him stay out of trouble! I know you miss him terribly, but he was so alive while he was here, he didn't miss a thing! God bless you all, thanks for sharing Jared with us, Lisa.
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